Borrelia Bacteria & ALS Connection

We have a strong body of evidence suggesting that ALS (in Deanna and in others we have been in contact with) is likely caused by an undiagnosed infection with very dangerous and, at times, deadly Borrelia bacteria and at times co-infections, which can be just as dangerous and deadly. We believe this because Deanna and the vast majority of other individuals we have worked with who have ALS, who have been properly treated (emphasis on the word properly), have been diagnosed with Borrelia infections that are not Lyme Disease. (All Lyme Disease is caused by Borrelia, but not all Borrelia is Lyme.) Given the body of evidence mentioned above, we believe that it is extremely important to be tested for Borrelia if you have been diagnosed with ALS. Here is one important factor to note: Borrelia are a hardy type of bacteria that are very tough to diagnose and even tougher to kill. Not every test and treatment plan actually works for this type of bacteria. In fact, most testing and treatments on the market are ineffective...and only a small number are effective.

Testing for Deadly Borrelia Infections found in Most ALS Cases

We have found that Deanna and the vast majority of individuals with ALS who we know have tested positive for rapidly progressing Borrelia bacterial infection. Borrelia infections that progress rapidly and/or are in advanced stages are dangerous, deadly, and they attack the nervous system. If you have a Borrelia bacterial infection, while the Deanna Protocol will help slow the progression of the disease, it is impossible to stop the progression of ALS unless you kill the bacteria first. The Deanna Protocol helps keep damaged cells alive, which is essential, and the Borrelia treatment stops the bacteria from killing more cells. The nervous system cannot heal if there is a dangerous bacterium constantly attacking it.

Borrelia is Tough to Diagnose

Most Borrelia tests on the market are inaccurate and will yield false negatives, even when you are actually positive. This is because Borrelia predominantly hides in the soft tissue (muscles, tendons, fat, etc.), rather than floating in the bloodstream (where it would be easy to detect). We have only found one testing plan on the market that has been reliable and consistent in diagnosing Borrelia. All others have yielded negative results when the patients being tested were actually found to be positive. Getting the wrong test and a false negative can make it very tough to access the correct medicine and start treatments because most doctors will not write the prescriptions without a positive test. (Note: We, Dr. Tedone, the Tedone family, and the sellers of the Deanna Protocol do not receive any financial benefits from recommending the tests and treatment plans below. We recommend them because they work.)

Do Not Cut Corners on Borrelia Diagnosis and Treatment: This Bacteria is Deadly in ALS

This is the most important thing you will ever read on this website: Failing to test for and treat Borrelia infections is not an option. Borrelia infections in ALS are very deadly. Those we know who have opted to cut corners in testing for or treating Borrelia or who have ignored the Borrelia treatment and testing all together have all died. This seems like a strange and overly harsh way to express ourselves on a website, but we feel a moral obligation to be honest about our findings. At this point, we feel that sugar coating it would be dishonest. Some are reluctant to address Borrelia because the correct testing is expensive and the treatments are inconvenient. To those of you who are reluctant please, ask yourself: Is saving money and increasing convenience worth dying for? Please put your health and your life first! We would not be this forward with you if this were not of the utmost importance.

Co-Infections

There are bacterial infections that are extremely common with Borrelia infections. That is why they are called co-infections...because they infect people along with Borrelia. These bacteria are just as debilitating as Borrelia itself and Dr. Tedone has seen their impact first-hand in his own family. The tests below that test for Borrelia also test for co-infections, but the treatments listed below are just for Borrelia. To be fully treated for co-infections and to gain a prescription to the treatments for Borrelia below, see a Lyme literate doctor. Lyme is also caused by Borrelia, so a Lyme literate doctor will understand your infection.

Borrelia Specialist Physician

It is extremely important to find a doctor who specializes in the treatment of Borrelia and tick borne infections. Many physicians claim they treat these infections, but are unequipped to treat them. This is why we strongly advise that you find a Borrelia/Lyme and tick borne disease specialist. Many of these doctors are known as Lyme disease doctors because certain species of Borrelia cause Lyme disease and Lyme is far more common than ALS. However, a Lyme specialist should be equipped to treat any species of Borrelia. This is a tough disease to treat, which is why many physicians who are not specialized in the treatment of Borrelia/Lyme and co-infections treat it incorrectly. Most antibiotic treatments on the market are unsuccessful in killing Borrelia because they have one or more of the following faults: the wrong antibiotics are used, the dose is too low, the dose is pulsed inappropriately (starting/stopping at the wrong times), or the treatment is too short. Many treatment protocols also lack high doses of probiotics, prebiotics, which are important when taking antibiotics that kill beneficial bacteria in your body, along with the bad bacteria. Lastly, many treatment protocols lack anti-fungal medication and cyst busters, which are important to prevent fungal infections that can be caused by antibiotics and when dealing with bacteria that have protective cysts around them that make them immune to antibiotics. There are many areas where a practitioner can go wrong when treating Borrelia and co-infections, so if you are searching for a physician to treat you, it's important that you, as the patient, be your own advocate and ask questions to ensure the doctor is the right one for you. A few doctors we know who specialize in Borrelia/Lyme and co-infections are Dr. Richard Horowitz in New York, New York, and Dr. Joseph Jemsek in Washington, DC, Dr. James Schaller in Naples, Florida. We have heard positive reports from patients, but we don't have much personal experience with these individual physicians. These doctors are widely known as Lyme doctors because Lyme is one of the more common diseases caused by Borrelia, but as we said above, any physician who specializes in Lyme should be able to treat any type of Borrelia and co-infections.Testing for Deadly Borrelia Infections and Co-Infections

Testing for Borrelia

Step 1: Provocative Antibiotics Protocol

 

 

Developed by Alfred Miller MD. – This test will help the Borrelia appear in a way that they will be more easily detectible in your IGeneX lab test results. (IGeneX lab test is below.) If you don’t do this step, you could get a false negative in your test.

  • For 21 days take (this will require a prescription from any of your treating physicians):
    • Azithromycin orally 500 mg once a day
    • Flagyl orally 500 mg daily after you eat. You can substitute Tinidazole or Tindamax if Flagyl causes gastrointestinal symptoms.
Step 2: IGeneX Laboratory Testing
  1. Order the Blood Collection Kit from IGeneX https://igenex.com/product/serum-whole-blood-collection-kit/
  2. When you receive the kit in the mail, fill out the form and indicate which test you want. Choose TBD Panel #4 or #6. The names change often, so find the one that tests for Borrelia and the highest number of co-infections. Have your doctor write a prescription for this test in case your doctor cannot draw the blood.
  3. If your doctor draws blood, they can draw the blood and send the kit back to IGeneX. If your doctor does not draw blood, you can go to a private blood collection center or have home health nurse or in-home phlebotomist (someone who comes to your home to draw blood) and have them draw your blood and send the kit back to IGeneX. NOTE: This is a very expensive test ($ 1,571) but may be covered by Medicare Part B. Typically, the test is not covered by other health insurances, but check with your insurance company. This is the ONLY test we have found on the market that is accurate. With the wrong test, it is very probable that you will test negative for Borrelia even when you are actually positive and it’s very hard to get prescriptions for treatments with a negative test result.
  4. Questions: If you have any questions, call IGeneX Directly
US 800 832 3200

International +1 650 424 1191, Email: customerservice@igenex.com

Test Results:

A positive or indeterminate (IND) test result means the bacteria is absolutely in your system, but there is not enough of it showing up in the test to get a strong reading. This is still a positive test result. Most of the bacteria will be in your soft tissue and will be undetected by tests, but the point of doing the provocative antibiotics protocol before testing is to draw at least a little bit of that bacteria out so the test can detect it. Many individuals assume "indeterminate" means "we don't know" or "inconclusive" and they choose to forgo treatment. The individuals we know who have done this have become much worse as a result.

 

Treatment for Deadly Borrelia Infections (Show this to your Lyme literate infectious disease physician)

 

  • Treatment Choice #1: for people with advanced and/or quickly spreading Borrelia infections. Cannot drink alcohol.
  • Treatment Choice #2: for non-rapidly progressing infections. Cannot drink alcohol.
  • Treatment Choice #3: for people who have non-rapidly progressing infections and do not wish to abstain from alcohol.

The treatment that worked for Deanna was the IV Rocephin (protocol #1) below. If you are a medical professional and are able to treat yourself, you can use the protocols below as a guide. However, it is strongly recommended that you find a Borrelia/Lyme and co-infection specialist to oversee your treatment. While the IV protocol below (#1) worked well for Deanna, Dr. Tedone's other daughter Chiara (who did not have a quickly progressing infection) is on the oral version of the protocol below (#3). While the medications worked for her in the sense that they killed the bacteria, she had a very tough time tolerating the dosage and needed to be treated for severe co-infections, which is why she chose to see a Borrelia/Lyme and co-infection specialist. This doctor is supervising her as she gradually increases the dosage and she is now feeling much better. 


Every one of the protocols below serves three purposes:

  1. To kill the Borrelia bacteria and to make it vulnerable to antibiotics and easier to kill
  2. To protect you from any side effects that happen as a result of the medication that kills the bacteria
  3. To replenish the good bacteria in your system. Antibiotics this strong can be dangerous if you don’t replenish the good bacteria that you kill throughout the course of treatment.

 Note: We, Dr. Tedone, and the Tedone family do not have any financial, familial or personal ties to companies that provide the products, testing, medications, and supplements recommended for testing or treating Borrelia.

Treatment Choice #1: For Rapidly Progressing Borrelia Infections

1. Intravenous Pulsed Antibiotic Method by Dr. Alfred Miller

a. Rocephin – 2 gms every 12 hrs – Monday Tuesday, Wednesday

b. Tinidazole – 500 mg orally every 12 hours – Take one to two hours before the Tinidazole opens the cysts and allow the antibiotics to kill Borrelia. (Borrelia bacteria is surrounded by protective cysts, which prevents antibiotics from getting to the bacteria.) - Monday Tuesday, Wednesday. This protocol is specific for the Borrelia bacteria and the species and strains, known to date, to be found in this phylum. Co-infections (infections with other bacteria aside from Borrelia) may also be present and require specific treatment.

c. Actigall - 300 mg orally 2 X a day – This prevents gall stones that can be caused by Rocephin - Monday Tuesday, Wednesday

d. Diflucan - 100 mg orally – This prevents fungal infections, to which you can become susceptible if you take Rocephin - Monday and Thursday

e. Probiotic and Prebiotic – Culturelle (probiotic) and Butyrate Calcium & Magnesium (pre-biotic by BodyBio, this is the one Deanna took). Take this daily to feed the good bacteria and keep them alive. If you have other high quality pro-biotics you would like to take, you may add them here. Dr. Tedone’s other daughter who has Borrelia is also on VSL #3 and Megasporebiotic. Don’t be afraid to introduce a wide variety of high-quality probiotics into your system. Remember, quality is extremely important. Not all probiotics are the same. - Monday – Sunday

f. NT Factor - 2 tabs three times every day. This repairs cell membranes from cells that have been damaged due to the Borrelia. Monday – Sunday

NOTE: The treatment protocol should be determined by the specific type of Borrelia present. Remember, not all Borrelia is the same species and co-infections can occur with other bacteria. With any antibiotic protocol, it is important to gradually work your way up to the maximum dose under the supervision of a Borrelia/Lyme specialist in order to reduce the severity of the Herxheimer reaction that may occur.

2. Cowden Support Program [CSP]

This is an herbal treatment program that covers many pathogens that may be present but are unknown. Deanna did this program while being treated with the pulsed antibiotic method and it made a big difference for her. https://www.nutramedix.com/ 

3. The Deanna Protocol [DP]

The DP keeps cells alive so, that once the infection is suppressed, we may be able to retrieve them and preserve function. (Cells in the body renew naturally. However, once they die, they cannot renew. This is why it’s important to keep the damaged cells that would otherwise die alive, so they can be repaired and renew when the infection is gone.)

 4. Absolutely no alcohol while on this treatment regimen! This is not negotiable. 

5. Do not forget to treat co-infections with whatever your Lyme literate physician recommends.

 

Treatment Choice #2: For non-rapidly progressing Borrelia

1. Oral Pulsed Antibiotic Method by Dr. Alfred Miller

a. Ceftin – 1000 mg twice a day [500 mg tablets] - Mon, Tues, Wed

b. Probenecid – 500 mg twice a day - Mon, Tues, Wed

c. Metronidazole [Flagyl, Tindamax or Tinidazole] – 500 mg twice per day to open the protective cysts around the bacteria that prevent antibiotics from killing the bacteria - Mon, Tues, Wed

d. Diflucan – 100 mg in morning only - Thursday and Saturday

e. NT Factor – 2 tabs three times every day – Monday - Sunday

f. R-Lipoic acid – One in the morning at least 30 minutes before eating Monday Sunday

g. Probiotic and Prebiotic – Culturelle (probiotic) and Butyrate Calcium & Magnesium (pre-biotic by BodyBio, this is the one Deanna took) Take this daily to feed the good bacteria and keep them alive. If you have other high quality probiotics you would like to take, you may add them here. Dr. Tedone’s other daughter who has Borrelia is also on VSL #3 and Megasporebiotic. Don’t be afraid to introduce a wide variety of high-quality probiotics into your system. Remember, quality is extremely important. Not all probiotics are the same. - Monday – Sunday

NOTE: The treatment protocol should be determined by the specific type of Borrelia present. Remember, not all Borrelia is the same species and co-infections can occur with other bacteria. With any antibiotic protocol, it is important to gradually work your way up to the maximum dose under the supervision of a Borrelia/Lyme specialist in order to reduce the severity of the Herxheimer reaction that may occur.

2. Cowden support program

An herbal treatment to eliminate any unknown pathogens. You can find it at www.nutramedix.com

3. Deanna Protocol

The Deanna protocol should be used in conjunction with whatever treatment modality is used because it keeps cells alive so, they may be revived later when the infection is gone. (Cells in the body renew naturally. However, once they die, they cannot renew. This is why it’s important to keep the damaged cells that would otherwise die alive, so they can be repaired and renew when the infection is gone.) 

4. Absolutely no alcohol while on this treatment regimen. This is not negotiable. If you wish to drink, there is a protocol below (choice #3) that is better for you.

Treatment Choice #3: An alternative oral treatment protocol for those who do not have rapidly progressing infections and do not wish to abstain from alcohol

 

1. Oral Pulsed Antibiotic Method

a. Ceftin - 500 mg – 2 every 12h – 1000 mg each dose –Monday, Tuesday, Wednesday

b. Probencid - 500 mg – 1 every 12h – Monday, Tuesday, Wednesday

c. Oregano oil- [Nature’s Way brand – over the counter] – 2 capsules q 12h opens cysts – Monday, Tuesday, Wednesday

d. Diflucan – 1 capsule every 24h - [Subdues yeast and opens cysts] - Monday, Tuesday, Wednesday

e. Artemisinin- [Doctor’s Best brand over the counter] - 100mg every 12h Monday, Tuesday, Wednesday

f. Culturelle Ultimate Strength Probiotic (over the counter) – Once a day – Monday - Sunday

g. Probiotic and Prebiotic – Culturelle (probiotic) and Butyrate Calcium & Magnesium (pre-biotic by BodyBio, this is the one Deanna took) - Take this daily to feed the good bacteria and keep them alive. If you have other high quality pro-biotics you would like to take, you may add them here. Dr. Tedone’s other daughter who has Borrelia is also on VSL #3 and Megasporebiotic. Don’t be afraid to introduce a wide variety of high quality probiotics into your system. Remember, quality is extremely important. Not all probiotics are the same. - Monday – Sunday 

h. Ivermectin - .2 mg/kg of body weight - First 4 Mondays only.

NOTE: The treatment protocol should be determined by the specific type of Borrelia present. Remember, not all Borrelia is the same species and co-infections can occur with other bacteria. With any antibiotic protocol, it is important to gradually work your way up to the maximum dose under the supervision of a Borrelia/Lyme specialist in order to reduce the severity of the Herxheimer reaction that may occur.

2. Cowden support program 

 An herbal treatment to eliminate any unknown pathogens. You can find it at www.nutramedix.com

3. Deanna Protocol

 The Deanna protocol should be used in conjunction with whatever treatment modality is used because it keeps cells alive so, they may be revived later when the infection is gone. (Cells in the body renew naturally. However, once they die, they cannot renew. This is why it’s important to keep the damaged cells that would otherwise die alive, so they can be repaired and renew when the infection is gone.)

How the Deanna Protocol fits in with the antibiotic treatments described above:

Can I just kill the Borrelia and forget the Deanna Protocol…or at least wait until I’m diagnosed with Borrelia to start the Deanna Protocol?

You can, but most individuals we work with (who have ALS), Deanna included, have seen much better results when both continuing to use the Deanna Protocol and treating the bacteria. Those who have skipped the Deanna Protocol and have focused solely on treating Borrelia have reported a rapid decline in their body’s ability to function during the time period in which they are trying to kill the Borrelia.

Here’s why: It often takes a long time to diagnose Borrelia and then even more time to bring the bacteria under control. During that time, the Borrelia is rapidly attacking and damaging the nervous system and the body's health and motor capabilities are declining. The Deanna Protocol comes into play to support healthy neurological function and keep nerve cells alive and functioning relatively well, considering they are being attacked by bacteria. After the Borrelia infection is gone, the Deanna Protocol keeps the nerve cells functioning optimally, despite all the permanent damage that the Borrelia has caused.

The Deanna Protocol is beneficial for the nerve cells because it supports normal energy levels in the nerve cells, supports healthy motor function in the body, and improves neural signaling. (Neural signaling is the ability of neurons to send signals, which is necessary for normal nerve function.)

Can I just take the Deanna Protocol and not treat the Borrelia?

You can, but those with ALS who have used both the Deanna Protocol and failed to treat the Borrelia have died. While they remained alive for much longer than expected, due to their disease progression slowing down, they have died in the end because Borrelia was attacking their nervous systems. The Borrelia attacks and damages the nervous system. The Deanna Protocol, (while it can help support normal energy levels in the cells, healthy motor function in the body and normal neural signaling) cannot get rid of the bacteria that is attacking the nervous system. The nervous system has the best chance of recovery if you kill the bacteria that is damaging it in the first place.

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